Moving story.
When Emily Rapp first discovers that her 9-month-old son, Ronan, has Tay-Sachs, an incurable and fatal disease that gradually robs a child of his nervous system, she wets herself; the floor and walls of the doctor's office seem to melt and liquefy; and she thinks, "weirdly," about her son's namesake, a boy she once knew whose name she would write in longhand "like a lovesick teenager." She recalls Emily Dickinson's poem in which a mind has been cleaved beyond repair, and calls out for her mother.
Check out rest of the article on NPR
Link to book on amazon "The Still Point of the Turning World"
When Emily Rapp first discovers that her 9-month-old son, Ronan, has Tay-Sachs, an incurable and fatal disease that gradually robs a child of his nervous system, she wets herself; the floor and walls of the doctor's office seem to melt and liquefy; and she thinks, "weirdly," about her son's namesake, a boy she once knew whose name she would write in longhand "like a lovesick teenager." She recalls Emily Dickinson's poem in which a mind has been cleaved beyond repair, and calls out for her mother.
Check out rest of the article on NPR
Link to book on amazon "The Still Point of the Turning World"
